Living with the Unimaginable

This is about “the suffering that is too terrible to name…” and learning to live

with The Unimaginable.”

PART 1

For all of the elaborate treatments which western medicines have tried to co-opt and create to treat mental illness and suffering, I question whether there are any that truly address bereavement in all its spiritual, social, and emotional complexities.

How do you mediate the effects of bereavement? If you ruminate, then you are wrong; if you avoid your grief, you are wrong; if you turn to coping mechanisms unproven by empirical evidence, you are again likely wrong. So how many things might be deemed “right”? What can possibly fill the hollow void left behind in the wake of a lost body and soul? The pain and emptiness that- for some- simply never seem to go away?

Who can possibly decide the right way to live with those emotions, those sensations, those perceptual states? What is most ethical, purposeful, or correct, truly? Could there ever be a right answer beyond the individual level?

I’ve gotten into trouble for asking questions such as these since I was a twelve year-old child, following the death of my father. It was as though adults around me thought that by asking such things I would become a weapon, dangerous to myself and to others. I was told not to think too hard; that was surely the problem (Rumination). Focus on other things; get a hobby or two. The pain of losing loved ones- in whatever capacity- will go away with time. Emotions are temporary.

I froze my brain as best I could; I numbed myself quietly through the false persona of a shiny happy blonde teen who tried to please everyone. I picked up as many hobbies as I was able, while I grew increasingly ill. Finding purpose and meaning as an adolescent is hard for many young people, but still I was guided towards dreams and aspirations- which my reality crushed hard. Because doing anything while living with debilitating chronic pain and fatigue- no matter the origin- is not often all that dreamy.

P2

Today, I feel that my questions remains valid. What is the danger inherent in asking who decides what is right for my mind and my body after they were shattered in childhood? Who decides my narrative- or for that matter anyone else’s? Why do so many societies seek to hide and control those of us who grieve profoundly, those of us who feel this world with our whole being?

Does we hurt to look at? Is grief painful to look at? Is it so incomprehensible for those who don’t feel such indignation in their bones every day that there are some people living in this world who just might?

Or perhaps- does bereavement bring up a painful reminder of the human condition itself? Of life’s fragility, and of how we as humans simply cannot control everything? We are mortal- we are stories with beginnings and endings, some much longer and more acclaimed than others. How do we hold that knowledge?

While this world cries out in suffering and I am alive to witness, as I watch my friends suffer- some more loudly, some silently- as I watch more lives vanish from this world, I will not apologize for my grieving. I will not apologize for getting angry. I will not apologize for not always immediately ascribing some sort of reason to all the chaos. For not ACT-DBT-CBT-ing my way through life. That is not the therapy which I believe to be my solution to pain and suffering. And I know it’s not the answer for many others, either.

 

I believe in listening, first. I believe in witnessing, first. I believe in radical compassion. I believe in contextualizing the entirety of an individual’s experience and asking someone what they make of their time here on this earth. I believe, I believe, I believe.

And as for joy and awe- sometimes even magic- and the possibility of the great beyond, yes, I believe in them, too. With all I have in me. But it’s my choice, and I believe in my way. And as others find their paths through ethical egoism and modified behavioral therapies, I respect their ways- so long as they don’t diminish the pain and lived experiences of others. Everyone deserves to find their way.

Perhaps the connectivity I imagine and yearn for won’t ever be truly captured in textbooks, journals, or research papers, even as I fervently search to better analyze it in my own research and studies surrounding the human psyche. I’ll use the DSM as I am required; I’ll work earnestly for my diplomas; but I won’t ever stop trying to plant seeds of change, of thought, wherever I go and grow.

I will continue to ask: What do we do when there are no words, when there is suffering too terrible to name?

“They are working through The Unimaginable.”

P4

Photographs from 2015-2019